Healthcare data ecosystem

European Children’s Hospitals Organisations

Data related to pediatric healthcare in Europe is currently underused: it exists only in small numbers at a given location and there are many different locations that currently cannot share that data for legal and technical reasons.

Data in the ecosystem could be used for clinical and other research, operations management and improvement, and better patient care.

The heterogeneity of national legislation and data infrastructures prevents efficient patient data sharing.

Use case #1: Understanding, comparing, and improving operational processes related to pediatric cardiac surgery in participating hospitals.

Use case #2: Data sharing of patient data for research collaboration and improved patient care.
Applying the data ecosystem rulebook approach for data collaboration helped to reduce the costs and risks involved in data collaboration.

ECHO network coordinator HUS (Helsinki University Hospital) has taken the results into practice.